All taxpayers across Canada, regardless of their political affiliations, need to know why we should provide publicly funded treatment programs for children (and sometimes adults) who have autism or what is commonly referred to as as “autism spectrum disorder” (ASD). Since this post is meant to inform fellow bloggers and those who use the Internet for research, I will do my best to write in everyday language.
We now know that in 1999, the then Ontario Progressive Conservative government tenders to provide intensive behaviour intervention therapy (IBI) for children under age six and by 2000, those specialized early learning programs were underway.
We also now know that the Dalton McGuinty Ontario Liberal government spent $2.4 million dollars fighting the parents of children with ASD so as not to provide the same type of therapy after age six. While the early learning program was meant to act as a transition to school, the proposed school-aged program was meant to help these children transition to life and work.
Now, rather than discuss the symptoms of autism or ASD and/or the details on how IBI uses repetitive targets to change behaviour, here and here are links where readers can find that information. What I want to concentrate on in this article is the fact that there is ample proof that any type of autism programming makes a difference in the lives of those with the disorder and their families. And, IBI is particularly cost-effective because of its intensity — as long as it is administered between 20 and 30 hours a week.
One source was a study by Krister Jarbrink and Martin Knapp (2001) for the Institute for Psychiatry and the London School of Economics in the U.K. They found that even minor improvements for people with autism could substantially reduce costs over a lifetime.
Another study was done by John W. Jacobson, James A. Mulick and Gina Green (1998), for Independent Living in the Capital District, Children’s Hospital of Ohio State University and the New England Center for Children. The study was titled “Cost-benefit estimates for early intensive behavior intervention for young children with autism.”
What the study found was “that significant cost-aversion or cost-avoidance may be possible with EIBI [early IBI].” They outline estimates of what the social costs would be with the treatment and without. Put in purely practical terms, what it means is that the disability assistance benefits and health care costs later in life were far higher if IBI was not provided.
So, knowing there is a personal, social and cost-benefit when IBI is provided in early learning programs as well as in public schools, why is it that B.C., Manitoba, PEI, Alberta and the Yukon (and now to some extent in Ontario, although parents are experiencing some disappoint there) are the only Canadian jurisdictions where this currently happens?
Given these findings, all Canadian provinces and territories should be providing this treatment, even if it means getting the federal conservative government to fund it.
Notes:
- For further information, read the white paper entitled “Canadian Autism Research Agenda and Canadian Autism Strategy” prepared by Autism Society Canada in March of 2004. It is very thorough.
- As a parent of an adult son with ASD (now 42) , here is our personal story.
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