Archive for 22nd July 2008

Radio host wrong, kids with autism NOT brats!

I have heard it all before, in fact far too many times. Kids with autism are not brats!  Kids with autism are not simply acting out!

And, to all those who would say that, I say: Walk a day in their shoes (or their parents’ shoes) and then tell us they can control what they do or say like everyone else.

No, in my opinion, the only people who should “cut out the act,” are people like radio host Michael Savage, who make unsubstantiated claims that 99 percent of kids with autism are misdiagnosed. Like far too many people in our society – people who have no idea whatsoever of what they are talking about — he is displaying a total lack of empathy and ignorance!

Children with an autism spectrum disorder are children who, through absolutely no fault of their own, were born with a disorder that would impact not only their own lives but those of everyone around them. And, while it is true that individuals with mild symptoms of autism are able to function creatively and normally in our society, those with a more severe form on the spectrum will likely never know what it is like to live a normal life.

In other words, those with a severe form will never know what it is like to graduate from college or university, never know what it is like to have a regular competitive job or career, never know what it is like to bring up a family, or never know what it is like to retire and travel in their leisure years.

That is not to say they cannot have a productive life. They can. My son is 43, married to a wonderful woman who has physical and developmental disabilities. They are companions. He takes care of her, doing the shopping, cooking and cleaning. He also volunteers at a local nursing home. But, he still misses all the normal milestones that other people experience. He is of average intelligence, so make no mistake about it, he knows what he is missing. We talk about it often, particularly now that he is in his early forties — at just the right time when all of us think about where our lives have been and where we want to go.  

So, to suggest these individuals simply need “to cut out the act” is nothing short of cruel and abusive. While some are calling for Savage to be fired, I am not sure about that. It is the essence of free speech that people can make cruel and abusive statements. There are plenty of shock jocks that represent all manner of nonsense.

The bottom line is we simply don’t have to listen to them if we don’t like it. As a result, what I would recommend instead, is for listeners to boycott the radio station.

H/T a regular reader.

   

Parents - CBC wants your “education” story!

Parents, are your children getting the best education possible? Whether yes or no, this is your chance to tell it like it is. CBC says they will be conducting an in-depth survey about attitudes to education across Canada.

If you have a positive story, tell it. But, if you have a horror story or a story about frustration and endless wrangling with your child’s school or school board, tell that story as well. Here is what the CBC says it wants to know to compile their school report:

Got an issue or story that you think we should know about? Tell us. We’re surveying parents and educators to bring you an in-depth look at education across the country.The results will be compiled and investigated for our education series, to be featured on CBC radio, television and our web site this fall. Send your story below. Then, fill out our 10-minute education survey.”

Above all, let’s not sugar coat this report. Tell it like it is. Perhaps some good will come out of it. Perhaps we will find out the differences between programs and services in each province and territory. Perhaps we will find out how effective or ineffective the publicly funded schools are compared to independent schools. And, last but not least, perhaps we will find out how effective school choice is in those provinces that allow public funding to pay for charter schools or provide vouchers to independent schools.

Or, will this survey be biased one way or the other? For example, why is a parent’s education level relevant? Remember, this is self-report research. It will already be biased in that only certain people will find the survey and only certain people will respond. While there is nothing wrong with self-report, why is a parent’s education level relevant in this case? 

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